Saturday's rest proved well for us and it gave us all of Sunday morning to pack and clean our Ronald McDonald house room. Interesting how that program works and is available. It is a terrific program.
We got home to Frisco early evening on Sunday after stopping to eat.
Yesterday, we had a little bit of an ordeal in which we needed to fill a prescription for Emily's nerve pain with a medicine called neurontin. However, we had a little hiccup in getting it. Seems as though very few pharmacies carry it and can't get it in until ordered and received the next day. We were delayed in getting it and could have ordered it Sunday night had we known that, but we had read that there were some legal issues and repercussions of taking neurontin, which had us concerned.
Well, as you can imagine, Emily was in pain a good part of the day yesterday while we were running around trying to find the medicine. We finally found a lab that actually mixed it for us.
This morning, we have a bit of good news and are hoping it's not just a fluke to have happened. Emily woke up with a wet diaper, which indicates...yes...she emptied her own bladder without the catheter. We're excited, to say the least, and poor Emily is a little confused since we've been teaching her not to go in her diaper. We'll see how the day goes and if she's able to continue. But, we will say, most definitely, this is a step in the right direction.
We'll keep you posted.
Tuesday, July 21, 2009
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