Certainly, a week ago, we would not have thought we'd be where we're at today. So thankful, we are. Emily has started standing on her own for moments at a time, as wobbly as she is. She tells us, "I want to walk." Which means it's her choice for us to hold both of her hands as she slowly takes steps across the floor. As opposed to laying down on the floor and dragging her legs. It's amazing that she chooses to do that. Her leg pain is still there, though it seems to subside on some days. We've tried half doses of the nerve pain medicine so as to wean her off of it, but found that there are times to give the full does three times a day as prescribed.
Still...amazingly, no need for the catheter. I can't say enough of how much we're relieved not to have to do that.
I suppose we're taking it as it comes. We keep reminding ourselves of what the surgeon said of the possibility of this surgery needing to be done again. Although, he was anxious for us, at sign of her gaining enough strength to have the surgery to install the veptr as soon as possible, so as to begin straightening her spine. Otherwise, at this rate, she will never have opportunity.
We're hoping she will be able to start school this fall. The same that Andrew did when he was 3, which is a pre- pre-k to some degree. We'll see.
Tuesday, July 28, 2009
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